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Volume 15, Issue 4 (9-2025)
Iran J Ped Hematol Oncol 2025, 15(4): 621-636 |
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Ethics code: IR.SBMU.RETECH.REC.1402.598
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Asadi F, Daeechini A H, Ramezanghorbani N. Developing a Model for the National Pediatric Cancer Registry. Iran J Ped Hematol Oncol 2025; 15 (4) :621-636
URL: http://ijpho.ssu.ac.ir/article-1-932-en.html
URL: http://ijpho.ssu.ac.ir/article-1-932-en.html
Department of Health Information Technology and Management, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences, Tehran, Iran & Professor of health information management, Department of Health Information Technology and Management, School of Allied Medical Sciences, Shahid Beheshti University of Medical Sciences, Tehran, Iran
Abstract: (98 Views)
Background: A pediatric cancer registry is a crucial tool for collecting and managing health care data. The development of a national registry model for pediatric cancer is vital for organizing and overseeing data effectively. This study aimed to develop a model of the national pediatric cancer registry in Iran.
Materials and Methods: This study is an applied type. In the first phase, a systematic search was conducted across the PubMed, Web of Science, and Scopus databases. Additional grey literature was also explored through targeted Google searches. Some keywords related to pediatric cancer and registry were used to extract components for a national pediatric cancer registry model. Colombia, Denmark, China, and Indonesia were selected for a comparative study due to their comprehensive registry information, emphasis on registry processes, and geographical diversity. In the second phase, the proposed national pediatric cancer registry model was presented. In the third phase, the model was validated through a two-step Delphi technique using a questionnaire.
Results: This study identified key components of a national pediatric cancer registry. Four main components, including general information, organizational structure, content, and registry process, were identified as the main components of the national pediatric cancer registry model in Iran. Using a two-stage Delphi technique, 37 model components were systematically reviewed, and the final approval was achieved with the consensus of all the experts.
Conclusion: The proposed model establishes a robust informational infrastructure to enhance the collection, management, and oversight of pediatric cancer data nationally. It is expected to improve survival monitoring and the quality of care, although further research is essential to evaluate its real-world effectiveness in Iran.
Materials and Methods: This study is an applied type. In the first phase, a systematic search was conducted across the PubMed, Web of Science, and Scopus databases. Additional grey literature was also explored through targeted Google searches. Some keywords related to pediatric cancer and registry were used to extract components for a national pediatric cancer registry model. Colombia, Denmark, China, and Indonesia were selected for a comparative study due to their comprehensive registry information, emphasis on registry processes, and geographical diversity. In the second phase, the proposed national pediatric cancer registry model was presented. In the third phase, the model was validated through a two-step Delphi technique using a questionnaire.
Results: This study identified key components of a national pediatric cancer registry. Four main components, including general information, organizational structure, content, and registry process, were identified as the main components of the national pediatric cancer registry model in Iran. Using a two-stage Delphi technique, 37 model components were systematically reviewed, and the final approval was achieved with the consensus of all the experts.
Conclusion: The proposed model establishes a robust informational infrastructure to enhance the collection, management, and oversight of pediatric cancer data nationally. It is expected to improve survival monitoring and the quality of care, although further research is essential to evaluate its real-world effectiveness in Iran.
Type of Study: Research |
Subject:
Oncology
Received: 2025/01/13 | Accepted: 2025/08/27 | Published: 2025/09/19
Received: 2025/01/13 | Accepted: 2025/08/27 | Published: 2025/09/19
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